Starting September 1st, 2018, the Roya Kabuki Program is able to offer virtual visits in the Roya Kabuki Telehealth Clinic. How does it work? Once a family has established care for their child with the Roya Kabuki Clinic at Boston Children’s Hospital, the family will be eligible to schedule follow-up appointments with Dr. Bodamer and/or […]
BoLD poster at WORLD in San Diego Members of the BoLD team traveled to the 14th Annual WORLDSymposium in San Diego in February to learn about the exciting developments in the field of lysosomal storage disorders. Dr. Bodamer chaired a Satellite Symposium supported by Amicus Therapeutics on “Early treatment of lysosomal disorders: a closer […]