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Going the extra mile for KS

Going the extra mile for KS

It’s not everyday that somebody runs a marathon, or that somebody raises over $10,000 for a research initiative.  On April 15, 2019 Betsy did both!  We are extremely proud of Kabuki mom Betsy Jackson for completing the 2019 Boston Marathon. Despite the rain and unpredictable New England weather, Betsy finished the 26.2 mile race with […]

Kabuki Team the visits State House

Kabuki Team  the visits State House

  Members of the Kabuki Program recently attended the Boston Children’s Hospital Children’s Advocacy Network Breakfast at the Massachusetts State House.  While celebrating BCH’s 150th birthday, we took the opportunity to meet with Representative Christine Barber to share about the Kabuki Program and some recent bills and initiatives related to insurance coverage that will greatly benefit […]

Kabuki Friends Crushed the Walk!

We walked, laughed, raised awareness, enjoyed some ice cream sandwiches and contributed over $12,000 to the Roya Kabuki Program at BCH!  The Roya Kabuki Team would like to send an enormous thank you to every person who walked on Sunday or supported the fundraising efforts. The spirit and laughters from the Kabuki Syndrome community is […]

Team Kabuki is Half Way There!

Team Kabuki is Half Way There!

Team Kabuki is just over half way towards reaching our fundraising goal for the Roya Kabuki Program!  As the event is approaching this weekend (Sunday, June 10) we are getting excited to walk with some local families, raise awareness, and celebrate the Kabuki Syndrome community. More details for the walk can be found here.  There […]