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Telehealth Clinic

Telehealth Clinic

Starting September 1st, 2018, the Roya Kabuki Program is able to offer virtual visits in the Roya Kabuki Telehealth Clinic. How does it work? Once a family has established care for their child with the Roya Kabuki Clinic at Boston Children’s Hospital, the family will be eligible to schedule follow-up appointments with Dr. Bodamer and/or […]

Walk for Kids

Walk for Kids

Boston Children’s Hospital Eversource Walk for Kids   Save the Date: Sunday, June 10, 2018 Location: DCR Hatch Shell   On June 10, 2018, our team Kabuki Friends is walking to support the efforts of the Roya Kabuki Initiative, so that we may create a happier and healthier future for this wonderful community.  Kabuki Kids, […]

BoLD @ WORLD 2018

BoLD @ WORLD 2018

BoLD poster at WORLD in San Diego   Members of the BoLD team traveled to the 14th Annual WORLDSymposium in San Diego in February to learn about the exciting developments in the field of lysosomal storage disorders. Dr. Bodamer chaired a Satellite Symposium supported by Amicus Therapeutics on “Early treatment of lysosomal disorders: a closer […]